The Coalition of Skin Diseases (CSD) consists of several organizations that represent patients suffering from some of the 3,000 known types of skin disease. The groups share a common mission of educating patients, advocacy and supporting skin disease research that will lead to new treatments and cures. CSD members have engaged in collaborative advocacy efforts, including Skin Disease Research Day and NIAMS Coalition Day.  To visit the CSD online, click here.


Jackie Gardner, CSD President
Vice President & Executive Director
Vitiligo Support International
PO Box 4008
Valley Village, CA 91617-0008
Visit the website


Member Organizations

American Skin Association, Inc.
346 Park Avenue South, 4th Floor
New York, NY 10010
Tel: 212-889-4858
Fax: 212-889-4959
Send an email
Visit the website

Basal Cell Carcinoma Nevus Syndrome/Gorlin Syndrome
BCCNS Life Support Network
Kristi Schmitt Burr, Executive Director
PO Box 321
Burton, OH 44021
Tel: 440-635-0078
Fax: 440-635-0267
Send an email
Visit the website

Cicatricial Alopecia Research Foundation (CARF)
Sheila Belkin, CEO
PO Box 64158
Los Angeles, CA 90064
Tel: 310-475-2419
Fax: 310-475-4883
Send an email
Visit the website

Cutaneous Lymphoma Foundation
Judy Jones, Executive Director
PO Box 374
Birmingham, MI 48102
Tel: 248-644-9014
Fax: 248-644-9014
Send an email
Visit the website

Dermatology Nurses Association (DNA)
Victoria E. Elliot, R.Ph., MBA, CAE, Executive Director
15000 Commerce Parkway, Suite C
Mt. Laurel, NJ 08054,
P: 1-800-454-4362
F: 856-439-0525
dna@dnanurse.org
www.dnanurse.org
 

Dystrophic Epidermolysis Bullosa
DebRA of America, Inc.
Suzanne Cohen, Executive Director
5 West 36th St., Suite 404
New York, NY 10018
Tel: 212-868-1573
Fax: 212-868-9296
Send an email

Visit the website

Ehlers Danlos National Foundation (EDNF)
Cynthia Lauren, Executive Director
3200 Wilshire Blvd., Suite 1601
Los Angeles, CA 90010
Tel: 213-368-3800
Fax: 213-427-0057
Send an email

Visit the website

Foundation for Ichthyosis and Related Skin Types (F.I.R.S.T.)
1364 Welsh Road, G2
North Wales, PA 19454
Tel: 215-619-0670
Fax: 215-619-0780
Send an email
Visit the website

Hidradenitis Suppurativa Foundation, Inc.

7895 Via Belfiore #4
San Diego, CA 92129

F: 619-239-3271
info@hs-foundation.org

www.hs-foundation.org

Inflammatory Skin Disease Institute

LaDonna Williams, Executive Director

P.O. Box 1074
Newport News VA 23601

Toll Free: 800-484-6800, ext. 6321

P: 757-223-0795

F: 757- 595-1842

http://www.isdionline.org/

LaDonna.Williams@isdionline.org

International Pemphigus & Pemphigoid Foundation (IPPF)
Janet Segall, Interim Executive Director
1540 River Park Drive, Suite 208
Sacramento, CA 95818
Tel: 916-922-1298
Fax: 510-527-8497
Send an email
Visit the website

National Alopecia Areata Foundation (NAAF)
Vicki Kalabokes, Executive Director
14 Mitchell Blvd.
San Rafael, CA 94903-1953
Tel: 415-472-3780
Fax: 415-472-5343
Send an email

Visit the website

National Eczema Association (NEA)
Vicki Kalabokes, CEO
4460 Redwood Hwy., Suite 16D
San Rafael, CA 94903
Tel: 415-499-3474
Fax: 415-472-5345
Send an email
Visit the website

National Foundation for Ectodermal Dysplasias (NFED)
Malinda Heuring, Director of Education
PO Box 114
Mascoutah, IL 62258
Tel: 618-566-2020
Fax: 618-566-4718
Send an email
Visit the website

National Psoriasis Foundation
Gail M. Zimmerman, President and CEO
6600 S.W. 92nd Ave., Suite 300
Portland, OR 97223-7195
Tel: 503-546-8366
Fax: 503-245-0626
Send an email
Visit the website

National Vitiligo Foundation
Robert D. Haas, Executive Director
76 Garden Rd.
Columbus, OH 43214
Tel: 614-261-8145
Fax: 614-261-8245
Send an email

Pachyonychia Congenita Project (PC Project)
Mary Schwartz, Executive Director and CEO
2386 E. Heritage Way, Suite B
Salt Lake City, UT 84109
Tel: 877-628-7300
Fax: 877-628-7399
Send an email
Visit the website

Society for Pediatric Dermatology (SPD)
8365 Keystone Crossing, Suite 107
Indianapolis, IN 46240
P: 317-202-0224
F: 317-205-9481
spd@hp-assoc.com

http://www.pedsderm.net

The Sturge-Weber Foundation
Karen Ball, President and CEO
PO Box 418

Mt. Freedom, NJ 07970
Tel: 973-895-4445
Fax: 973-895-4846
Send an email
Visit the website

Vitiligo Support International
Jackie Gardner, Executive Director
PO Box 4008
Valley Village, CA 91617-0008
Tel: 818-752-9002
Fax: 818-907-1511
Send an email
Visit the website